recoveryafterstroke.com<\/a> where you can download a guide that will help you it’s called seven questions to ask your doctor about your stroke.<\/p>\nIntro 42:10
\nThese seven questions are the ones Bill wished he’d asked when he was recovering from a stroke, they’ll not only help you better understand your condition, and they’ll help you take a more active role in your recovery. Head to the website. Now, recoveryafterstroke.com and download the guide. It’s free.<\/p>\n
Will Perringwood 42:31
\nReally interesting you raise to other sort of side tangent because like we as brain injury survivors, I don’t know if you find this Bill, but we become focused and almost bordering on obsessed with certain things like statistics or facts that you learn or hear about brain injuries. And my current one at the minute is that 85% of marriages involving brain injury break down, I seem to be very, very focused on it. And that is just absurd.<\/p>\n
Will Perringwood 42:59
\nI mean, like, we’re always hearing in the media or TV programs about how 50% Or one in two marriages don’t work, whether that’s in America or the United Kingdom or wherever. And that’s high on its own, then you throw in a brain injury involved until it shoots up to 85%. That’s just easy.<\/p>\n
Will Perringwood 43:18
\nAnd once I had heard that statistic, that fact, it then made me look at all the people I’ve met through my brain injury journey because this fantastic charity that I ran the marathons for called Headway UK, the national brain injury charity who are amazing. All the brain injury survivors I met through them.<\/p>\n
Will Perringwood 43:40
\nI kind of, it sounds patronizing, say I kind of looked around the room, I love talking to them all. But a lot of them were sort of telling me the tales of broken marriages or separated marriages and just kind of thought it’s just such a shame.<\/p>\n
Bill Gasiamis 43:57
\nYeah. I don’t know, I have a theory on that, is that the marriage is probably on the way out. Anyway, it’s just that the incident that needed to trigger it hadn’t happened yet. And then it happened. And it’s like, I met a few people who have gone through that over the years as well. And one of the examples was, this wasn’t somebody who I interviewed.<\/p>\n
Bill Gasiamis 44:23
\nOne of the examples was that, that person who left the stroke survivor, the wife, left because he was an asshole anyway. And she was sure as shit not going to be around to wipe his ass for him. Her words and that’s like, okay, I can kind of grasp that, I can kind of get that situation. And then the other unfortunate situations of it being so triggering to the spouse.<\/p>\n
Bill Gasiamis 44:58
\nThat the spouse doesn’t have the the resources, the skills, the tools, the resilience, to hang around and deal with such a dramatic situation, because it would negatively impact their life and they decided to leave. And I think that that’s a great reason to leave a marriage. Because if you’re going to be that bad at going through what the other person is experiencing, you’re not going to be offering any support or help, you might as well not be there.<\/p>\n
Bill Gasiamis 45:27
\nSo some of it, I think, is positive, absolutely positive. Although it appears not ideal. The last thing you want to be is in a marriage where one person resents the other, and then one person doesn’t have the skills to support their partner or to manage to deal with it themselves, you know, so many marriages are not dealing with day to day life. Imagine throwing in a brain injury, and all the stuff comes with that.<\/p>\n
Bill Gasiamis 46:13
\nAnd if some people don’t see it, as their responsibility or their right, or their role to be the caregiver for another person for the entirety of the rest of their lives, and putting everything that they’ve ever dreamed of on hold. So, at the beginning, I was like, yeah, I was very shocked by the statistic. But I was also concerned about how can somebody be so harsh or so cruel? Or, but sometimes, I think it’s the best thing that they can do is decide not to hang around there.<\/p>\n
Will Perringwood 46:54
\nI mean, I think not just us as brain injury survivors, but the general population just don’t appreciate what, how can I phrase this, the strain it will put on a marriage, because, for example, the way it was explained to me was you literally change overnight into a different person.<\/p>\n
Will Perringwood 47:13
\nSo there’s a great online, i think it’s another podcast, or something else I follow called the identity thief, really interesting blog. So you have a brain injury and your identity is stolen. And I can completely relate to the fact that somebody, male\/female, has fallen in love with a certain person. But then suddenly, overnight, that person is literally dead, or is literally not there anymore.<\/p>\n
Will Perringwood 47:38
\nAnd they wake up the next day, and there’s a pretty completely new person that they have to not only get to know, but somehow try and find a way to fall in love with again, and it’s just a complete different person. So I can completely understand why so many marriages have failed involving a brain injury because it’s literally a different person.<\/p>\n
Bill Gasiamis 47:58
\nYeah. And the person on the other end of it, the person who hasn’t had that injury has to grapple with their own identity, the identity of the person who’s changed the joint identity of what it was like to be married, and what that meant, and what their combined dreams were and all that type of thing. Yeah, it’s such a tough thing. And I’d like to make people feel better about it.<\/p>\n
Bill Gasiamis 48:26
\nIf people listening and watching this have been through a divorce after the stroke, hopefully they haven’t taken it personally, it says more about perhaps the strength of the marriage anyway. And then maybe it says a lot about where the other person was at. So I think for some people to leave, I feel like it’s like a selfless decision as well, because they’ve put themselves first.<\/p>\n
Bill Gasiamis 48:58
\nAnd so if you caregivers do that, and then they become collateral damage. And it’s so terrible, to be involved and to see people who need help and support and their caregivers pass before them or become mentally unwell as a result of what it is that they have to step up, supposedly to do. So marriage is one of those things I know that in the Greek faith, the Orthodox Christian faith, you know, we don’t get up and say, till death do us part or any of that stuff.<\/p>\n
Bill Gasiamis 49:39
\nAnd I don’t know if that phrase till death do us part makes it harder on people who have gone through a marriage ceremony that makes them say that during the vows, because that’s all they say. They just say till death do us part, they don’t say till death do us part and for disability and for all this other stuff. I feel like that those words can potentially impact people to stay in a marriage where perhaps they would rather not be there and then they become a lesser person.<\/p>\n
Bill Gasiamis 50:22
\nAnd that impacts everybody negatively. I’m not saying that in my marriage just because I didn’t say till death do us part, we didn’t take it as seriously. But I just feel that adds another layer of complexity, although, in our situation, we got married for the same reasons. We just didn’t say those words, we didn’t have to say them because it’s not part of our ceremony.<\/p>\n
Bill Gasiamis 50:56
\nSo it’s a real, it’s a conundrum man. And I’m just hoping that people feel okay about doing the best that they can with the resources they have, and the information they have at the time, you know, you cannot, not everybody can navigate this beautifully. That’s just not possible.<\/p>\n
Will Perringwood 51:14
\nI mean, I’ll just pick up on one word in particular, which is spot on, which is caregiver. Because it’s about roles, the roles you play in life and the roles you play in a relationship. And suddenly, you’ve gone from being a, you know, for example, if it’s a female, girlfriend, or fiance or wife, and suddenly you’re thrust and you’re thrown into this chasm this world, you’re now suddenly, not just a girlfriend, fiancee, wife, you’re now a caregiver.<\/p>\n
Will Perringwood 51:43
\nAnd that is such a massive, heavy term, that is, where you’ve literally got to the responsibility lies with you to look after absolutely everything to do with this other person. And sometimes this other person, your boyfriend or husband might be older than you, for example, they might be more successful than you, they might earn more money than you.<\/p>\n
Will Perringwood 52:02
\nBut suddenly you’re the caregiver of that person, you’ve got to look after them in every single aspect of life, which is quite daunting prospect. And that’s going to weigh heavy upon the caregiver, I think.<\/p>\n
Bill Gasiamis 52:19
\nYeah, absolutely. It’s a statistic 85% of marriages, you know, that don’t work out. But I think, we can make statistics look as bad as we want them to, and we can make them tell the story that we want to tell them. I think that’s a far more deeper and complex conversation about that. One worth having but a statistic generally, that seems that high in potentially being a negative thing.<\/p>\n
Bill Gasiamis 52:52
\nI think it’s still worth sort of paying attention to and pricking our ears up, you know, and kind of getting us to the point of saying, Okay, why is that? How can we improve that? Do we need to improve that? I don’t know. It’s such a complex topic. I don’t think there’s enough resources, governments wouldn’t have the resources to allocate to every illness that humans can have, and say, okay, cancer, guys, they get this much for marriage counseling, and stroke survivors, they get this much for marriage counseling.<\/p>\n
Bill Gasiamis 53:34
\nI don’t think there’s enough support in any way, shape, or form. And the worst part about it is the stroke survivors usually don’t have enough resources to put towards all of the services that they need to get through or to come out of it less and less impacted, I suppose. How can you? For me, it was such a terrible way for me to find out that I am incapable of managing my day-to-day.<\/p>\n
Bill Gasiamis 54:11
\nAnd now I’ve got to manage my day-to-day with stroke. And I say I mean, I was incapable is because all I knew was how to work a lot of hours. And I hadn’t yet mastered the art of being a better father, being a better husband, being a better son, a better brother, a better friend. It was something that I aspired to, but I wasn’t doing a lot of work to get to that point because I didn’t know where to start.<\/p>\n
Bill Gasiamis 54:41
\nAnd I felt like I was lacking some life skills at 37. I was trying to improve myself and be better. But then when you’re lacking just life skills, generally speaking, because you’re still a bit naive or wet behind the ears or are afraid to take on new challenges or do things differently. And then you’re thrust into the stroke world, then you really work out how inadequate you are and how unable you are to navigate life because no one’s ever taught how to navigate stroke. And God forbid they ever get to find out.<\/p>\n
Will Perringwood 55:19
\nI don’t know if this is a phrase that’s used much in America. But over here it gets used a lot in ranger, which is sink or swim. So you literally get like you say, you get thrust into a situation and you have the choice. You can either sink or you can literally swim you can either thrive, well one thing we came up with was thrive not just survive.<\/p>\n
Bill Gasiamis 55:45
\nYeah, yeah. That’s a great thing to aim for. Something a little bit about your son. I’ll see if I can make you cry a little bit more.<\/p>\n
Bill Gasiamis 55:53
\nI knew I could get you to cry. I’m so mean. How old is he?<\/p>\n
Will Perringwood 56:11
\nWell it’s his birthday in two days.<\/p>\n
Bill Gasiamis 56:16
\nWow, that’s awesome.<\/p>\n
Will Perringwood 56:18
\nHe’s gonna be five.<\/p>\n
Bill Gasiamis 56:20
\nIt’s such a cool age 4 5 6. It’s such a brilliant age.<\/p>\n
Will Perringwood 56:27
\nBut it’s the thing like the brain injury is, how can I express this correctly? Brain injury is obviously the hardest thing you’ll ever go through. But then that is met or confronted with like the best thing which is parenthood. And being a parent is hard enough for anybody. But to do it with a brain injury is even harder. And like, I’ll give you the most obvious example, which is changing nappies.<\/p>\n
Bill Gasiamis 57:13
\nUh huh. Yeah. You got out of it, right?<\/p>\n
Will Perringwood 57:15
\nWell, no, my wife was incredible. I mean, I would say hand on heart, I’m sure she’d agree, she changed the majority. But I did my best, you know, the messy nappies. I never shied away shall we say. But it was I mean, because, and this is another thing about brain injuries is how they affect you in two different ways, both the mental or hidden ways, or the physical ways.<\/p>\n
Will Perringwood 57:49
\nAnd it’s, again, what I found really interesting, like, this is absolutely no disrespect to anybody else that’s had a brain injury. But like, if you’re in a wheelchair, or if you have a cane or something like that, somebody can look at you or see you.<\/p>\n
Will Perringwood 58:04
\nAnd they can see there’s clearly a physical disability, where someone like me, and to use this phrase, again, Limbo, or purgatory, where you’re in the middle of two worlds, but in the middle of the able bodied world, and the disabled world, and you’re right down the middle of it of like either one or the other. So it’s like, this word, with such a heavy word that we’ve discussed a lot, which is disabled.<\/p>\n
Will Perringwood 58:30
\nAnd my wife’s often said to me, and we’ve talked about it, it’s like, do I consider myself disabled? And it’s like, because it’s such a big definition. It’s really difficult to sort of say, and that’s not even taken into the consideration, you know, the governmental benefits aspects and things like that is purely a personal thing.<\/p>\n
The Meaning of Disability<\/h3>\n
Will Perringwood 58:46
\nLike, do I consider myself disabled? And it’s like, well, on paper, yes, because I’ve technically had a brain injury, I’ve technically had a stroke, as in I’ve had a blockage to my brain, there’s been a blockage of oxygenated blood reaching my brain, which is on paper, the definition of a stroke.<\/p>\n
Will Perringwood 59:05
\nAnd so, again, the definition of disability is that, but it’s just like maybe it’s a personal thing. I don’t know maybe it’s just me. Because it’s such a heavy-loaded word or heavy-loaded term. It’s all of that that encompasses and incorporates.<\/p>\n
Bill Gasiamis 59:23
\nYeah, the thing about the word disability, it’s just inability. And and that’s the part that I don’t like about it, because there’s lots of people who are very, very abled in wheelchairs, you would know, participating in sports all over the world.<\/p>\n
Bill Gasiamis 59:41
\nThere’s an amazing lady who I’ve interviewed on the podcast, who is a somebody who experienced a stroke, and she lives with left side or right side, one on one. Well, perhaps it was hemiplegia, I don’t know exactly the term, but it means that her left leg or one of her legs, I’m going to call it the left because I forgot which one it was, her left leg and her left arm, she’s unable to use them fully.<\/p>\n
Bill Gasiamis 1:00:19
\nAnd yeah, she’s a powerlifter, she doesn’t use that side of her body to lift these ginormous boulders and pull trucks, and semi trailers and all that kind of stuff. But she’s doing it. So she has, if you look at her, you know, the definition of disability applies, you’d be able to say, well, you know, she appears disabled.<\/p>\n
Bill Gasiamis 1:00:50
\nBut she’s far from that she has found a completely different way to do that. And then the wheelchair basketball guys, or the wheelchair tennis guys and girls, and even the athletes in the Paralympics, that run, track and field and all that kind of stuff, that whole bunch of people are so abled.<\/p>\n
Bill Gasiamis 1:01:15
\nAnd yet, the word the best word that we came up with as a society is disabled. So I but I know what you’re saying about where you sit, you sit from that space where people recognize that you’ve got a challenge, and you’re struggling with a physical limitation.<\/p>\n
Bill Gasiamis 1:01:38
\nAnd that other place where you appear like you don’t suffer from a physical limitation, like as if the physical limitation is the only thing we can suffer from. There’s also that mental limitation that people experience in life, generally speaking, you know, through mental health issues. And then what a stroke could do to somebody’s mental state.<\/p>\n
Bill Gasiamis 1:02:04
\nAnd they’re invisible disability side of that is the part that I think you’re describing, it’s that we, I appear normal on the outside, and everyone concludes, or assumes that I am. And that’s okay. But I live with my deficits every single day, just nobody can see them.<\/p>\n
Bill Gasiamis 1:02:27
\nThat’s pain on my left side, that’s tightness. That’s a limp when I get tired, and not on a limp that anyone can see only the one that I can feel, and notice it dragging me to the left. And I have lately, I’ve become aware that I have a vision issue, a very small one, which my left eye does something weird, sometimes at certain amounts of sunlight, when I’m wearing sunglasses.<\/p>\n
Bill Gasiamis 1:02:55
\nIt kind of flickers in the top left-hand corner, and it makes my eyeball feel weird. I’ve only just maybe now associated it to perhaps it’s part of the left side deficits that I have. And that’s how it’s being expressed in my eye. So it’s a real conundrum is does it really matter that people don’t understand and that we have to re-educate them all the time? Do you try to re-educate them? Do you try and bring people on board to get a grasp of what you’re experiencing? Is that necessary?<\/p>\n
Will Perringwood 1:03:35
\nWell, this is one of the reasons why we did I mean, I started a blog. I mean, I’m far too old to understand or really know what a an online blog is really, I was never really there was never really my thing but because my wife who’s younger than me.<\/p>\n
Will Perringwood 1:03:50
\nAnd a lot of cooler than me, you know she has a finger on the pulse of this modern, I guess technology, whether it’s online, whatever, and she really into a blog and vlogs, which is fantastic. She encouraged me to start a blog, which was great.<\/p>\n
Will Perringwood 1:04:27
\nBecause of my memory issues, and like a touched upon before that I couldn’t remember that day. And we do this thing where like, we’d get to the evening, and we get into bed and kind of looking back on the day that it just occurred.<\/p>\n
Will Perringwood 1:04:42
\nAnd as strange as it sounds. It’s really difficult to understand or comprehend for anybody that doesn’t understand this world of brain injury. I could not remember, like we said before I couldn’t remember what I had for breakfast. I could remember much of that day.<\/p>\n
Will Perringwood 1:04:54
\nSo she encouraged me to do an online diary. And that’s how it started basically became an online diary. And also because we were living the part of the country that was far away from my family, and they’d often be ringing us or contacting us and saying, Well, what have you been up to this day? What I’ve been up to recently, and it was just like, no disrespect, it was like a really easy way of saying, well, have a look at the blog.<\/p>\n
Will Perringwood 1:05:23
\nIt’s a good idea. If they wanted to find out then look at the blog. And it’s a good way for them to touch base with us in a way. But no, I mean, it also helped me because another phrase that was stressed upon us by doctors and specialists with brain injuries, love routine.<\/p>\n
Routine To Help Memory<\/h3>\n
Will Perringwood 1:05:41
\nSo your your memory is really poor. But what helps it is by having that structure having that routine, and like I was always somebody that I wouldn’t say our rejected routine, but it’s like, for example, like, I didn’t like having the same meal every Monday night, every Tuesday night.<\/p>\n
Will Perringwood 1:06:00
\nI like to have a bit of variety. Well, I wouldn’t say routine was boring, but I wouldn’t say I embraced it as much as I do now whereas now is crucial. So I do tend to be like, Oh, what did I have a breakfast? I can’t remember, therefore have the same thing for breakfast every single day, because therefore it trains your brain into remembering what you’ve had for breakfast, because it’s that routine again.<\/p>\n
Bill Gasiamis 1:06:27
\nI see what you’re saying. So your blog is From Reporter To Supporter or is that the one?<\/p>\n
Will Perringwood 1:06:35
\nYes fromreportertosupporter.com.<\/p>\n
Bill Gasiamis 1:06:37
\nOkay. I’m trying to bring it up. It’s not coming up.<\/p>\n
Will Perringwood 1:06:45
\nNo, we stopped it a few years ago. And basically when other things took over, like becoming parents. It was a great way of chronicling or detailing our lives and my life with a brain injury. But it got nominated for an award which we was blown away for because we never went into it to search or seek out awards or recognition.<\/p>\n
Will Perringwood 1:07:09
\nIt was just purely an online diary to keep track of my memory really, any attention to you the word we got from it was hugely appreciated. It really was. I really enjoyed doing it because I struggled to remember what I was doing each week. It was like, if I did the same thing every Monday, then that somehow got ingrained into my brain.<\/p>\n
Will Perringwood 1:07:33
\nSo we used to set aside whether it was Monday or Tuesday became like write my blog day kind of thing. And that became set in the routine it was those little strategies or techniques was really, really helped with my memory.<\/p>\n
Bill Gasiamis 1:07:44
\nYeah. So me, suggesting that you get onto Tiktok and do a Tiktok thing. That means you actually didn’t know what I was talking about earlier. You got no idea what Tiktok is, if you don’t even know what a blog is, you wouldn’t know what Tiktok is. You don’t do social media, do you?<\/p>\n
Will Perringwood 1:08:04
\nNo, I do social media. But I would say at the age of 39, turning 40 this year, I’m far too old for Tiktok.<\/p>\n
Bill Gasiamis 1:08:13
\nYou know, I get what you’re saying, you don’t have to do the other things that other people do on Tiktok, but I love what you’re saying I think you’ve got a lot to offer is what I’m saying, you’ve got a lot to offer. And the fact that you’re a reporter and you have a way with words anyway. So you’d be able to express things that other people can’t express or don’t know how to express as effectively as you, you’ve got that skill. Were you a live TV reporter? Were you a newspaper reporter?<\/p>\n
Will Perringwood 1:08:43
\nI was a newspaper reporter. That’s very kind of you, the things you said. That’s very appreciated. Thank you.<\/p>\n
Bill Gasiamis 1:08:53
\nYeah, absolutely true. I mean, I say that because I’ve started to write a book recently. And I realized how terrible I am at putting things in words. It’s not that I don’t know how to express myself, it’s that I can’t concentrate long enough to put a good effort in on a daily basis, so that I can have it done by a period of time. I can’t meet a deadline if my life depended on it. But I’m seven chapters into a 10-chapter book.<\/p>\n
Bill Gasiamis 1:09:19
\nIt’s going to get edited and read by other people, and they are going to help me out with it because there’s no way I can do it on my own. And that’s cool. That’s all good. But I learned a lot because I now read books. And when I read, I’m not reading as a reader. I’m reading them as an author to see how other people have written.<\/p>\n
Bill Gasiamis 1:09:44
\nAnd I learned something interesting about Hemingway and how he revolutionized the world of books by providing a similar approach to writing a book or telling a story to the same way that he used to write for a newspaper because he was a newspaper reporter. And he would use the same format of writing a newspaper article, he would use that for writing a book.<\/p>\n
Bill Gasiamis 1:10:12
\nAnd that made the book extremely easy to read, extremely easy to understand, and engaging because his words and sentences were all short, sweet, and to the point. And I think he described it as there was never a wasted word in his books.<\/p>\n
Bill Gasiamis 1:10:33
\nAnd one of the things that he did was he would go back, and proofread and read and reread and rewrite again and again and again, until it was just a really amazing combination of passages to express what it was that he was trying to express about his character, or about any particular scene.<\/p>\n
Bill Gasiamis 1:10:59
\nSo I think what I’m saying about you is that you would have that ability to really get a message across whatever that message was. So when you’ve got nothing better to do, and you’ve got heaps of time up your sleeve, maybe get back onto the world of social media or blogging, you know, who knows?<\/p>\n
Will Perringwood 1:11:18
\nYeah, definitely, I’d love to do that. Because like, for example, so many journalists, newspaper journalists, go on to become authors. So for example, like my favorite writer was George Orwell who wrote 1984. And he started off as a journalist for the newspaper in this country called the observer in the 1940s. And yet, he went on to be an author, as well do 1984 and do Animal Farm, and I’d say he’s always been my favorite writer as well.<\/p>\n
Will Perringwood 1:11:43
\nAnd I think when you have that skill set of writing of learning how to write, then it’s obviously gonna lend itself or transcend itself to another world, such as writing books, and I would love to write. This was kind of my idea for a book. And this, if it sounds stupid, by all means, say it’s stupid. But like, I was always really interested in the kind of the world of brain injury in terms of like, there’s a patient in a bed.<\/p>\n
Will Perringwood 1:12:11
\nAnd yet, there’s this whole world going on around them. So there’s like a family and friends playing on this idea of, you know, brain injuries don’t just affect one person, they affect lots of people. And yeah, all these people around this bed, all these lives going on. And I liken it to the planets in the solar system, how they’re sort of circling or orbiting the sun, and the sun is like the patient.<\/p>\n
Will Perringwood 1:12:34
\nAnd that’s not to be sort of big headed or egotistical or anything like that. But how all these paths are going on around. And they’re all following and treading these paths. And I find it really interesting. There’s always sort of lines or train lines of journeys are going on.<\/p>\n
Bill Gasiamis 1:12:49
\nI love it mate. I love it. I’ll tell you why I love it. Because it’s exactly what I’ve thought about a lot of times how life still occurs around the stroke survivor, regardless of what they’re going through, and how terrible their time is. Life doesn’t get to go on hold and you don’t slow things down. Things just get remain frantic. And they continue around you.<\/p>\n
Bill Gasiamis 1:13:12
\nAnd I say that because we had that experience, I had a bleed in 2012 in February, and then I had one in March 2012. And then in 2014, I had a third bleed. And that bleed led to my brain surgery. And two weeks before my brain surgery. My mother-in-law passed away.<\/p>\n
Will Perringwood 1:13:33
\nAh, so sorry.<\/p>\n
Bill Gasiamis 1:13:35
\nYeah, thanks. So it’s that thing that you just described is that thing that I’ve thought of, a lot of times, it’s how in the periphery, people are still going through life every single day, the ups, the downs, the joys, the sadness. And it’s often an opportunity missed to share what it is that they’re going through while dealing with the stroke survivor.<\/p>\n
Bill Gasiamis 1:14:10
\nBecause you’re coming from a Greek family, we had 75,000 People that hospital every single day that I was unwell calling, ringing, checking in, and then going back to their daily lives. And then at the same time having me in their thoughts all the time. And then having my wife in their thoughts all the time and then my children and it’s exactly what you described.<\/p>\n
Bill Gasiamis 1:14:35
\nThe idea that you described in my mind is what I’ve often contemplated is how do other people coexist with a stroke survivor in that moment, and I think it’d be a brilliant story to tell<\/p>\n
Will Perringwood 1:14:57
\nOr we should work on it together if you’re up for it.<\/p>\n
Bill Gasiamis 1:15:00
\nI’m up for it. I’m not sure what I’m going to offer, but yeah, you tell me and I might be able to assist let me get through this book, which I’ve been writing for about a year now. And it’ll be done soon. And I hope that when it’s done, it’s really going to be successful not from the point of view that it needs to make money that I feel that it’s actually valuable.<\/p>\n
Bill Gasiamis 1:15:29
\nAnd it’s good to read, and it’s worthwhile and that somebody’s going to pick it up and go, “Oh, my God, what a great insight.” And as a result of that, it supports other stroke survivors is the main reason why I wrote it, you know? And once that’s done, you never know, I might take you up on that offer. We can co-write something or create something, that’d be lovely. How good would that be?<\/p>\n
Will Perringwood 1:15:29
\nThat’d be brilliant. Because it’s kind of the voice of strokes or brain injury survivors coming from brain injury survivors? Who’s gonna know brain injury better than brain injury survivors themselves?<\/p>\n
Remembering Emotions After Stroke<\/h3>\n
Bill Gasiamis 1:16:12
\nYeah, I completely agree. So tell me about as we come to the end of this podcast episode, tell me about your strategy after this interview. So we’re going to record this interview. And then we’re going to edit it and I’m going to get it up in a couple of weeks, by you’re going to remember that this was recorded. And will you listen back to it, to remember what it was that we discussed?<\/p>\n
Will Perringwood 1:16:29
\nI’m gonna have to because for example, with all the best intentions, I’m sat here right now with a pad of paper and a pen, fully intending to write notes on everything that’s going to be said tonight, but for some reason, I’ve just not felt compelled to write anything.<\/p>\n
Bill Gasiamis 1:17:02
\nYeah, maybe because you’ve got a recorded version of them.<\/p>\n
Will Perringwood 1:17:08
\nI guess that’s true. But like so when I look back on my days from the day before, I’ll again live and die by my phone calendar. So I’ve had a pretty full on day today, which has been fantastic. As I said to my mum earlier, I love having busy days. So I’d rather be busy than not busy. I’d rather be doing stuff than not doing stuff.<\/p>\n
Will Perringwood 1:17:28
\nAnd so I will look back on my phone calendar tomorrow and see oh, I had a podcast interview last night. That was really cool. You see the event in your calendar, but what it doesn’t convey is say, for example, feelings or emotions. So it’s pretty blank, you know, oh, podcast interview, 10 o’clock till 11:15. But I’m tempted to write in now actually, when it’s finished and say, I really enjoyed it I had a really, really good time. And that’s where the kind of blurring of the lines or the black and white is interesting, because it doesn’t convey emotion.<\/p>\n
Bill Gasiamis 1:18:05
\nIt’s just matter of fact, there was a podcast interview that we participated in. So when you hang out with friends, at the local pub, or at dinner or at a restaurant, do you take a pen and pad with you there as well?<\/p>\n
Will Perringwood 1:18:21
\nWhen I have my phone, I do tend to write a lot of phone notes, even if it’s just conversations or jokes inside jokes, or a lot of it is like dates not anniversaries but like if I need to remember something, I will write it down in my notes in my phone notes.<\/p>\n
Will Perringwood 1:18:40
\nAnd like, again, it’s something my wife picked me up on before about why have you written this phone note about this? It’s so irrelevant, but in that particular moment, it may have been relevant or important to me, I won’t be able to explain why it is important. But in that moment, I felt it was.<\/p>\n
Bill Gasiamis 1:18:58
\nYeah, I love it. Absolutely love it. I’ve absolutely had a blast chatting to you get to know you. And hearing your story. Thank you so much for agreeing to be on the podcast reaching out. And coming on man. It was really cool to have a chat with you.<\/p>\n
Will Perringwood 1:19:17
\nThank you. I really appreciate it. I hope people find it useful.<\/p>\n
Bill Gasiamis 1:19:20
\nI’m sure they will. Absolutely. We spoke about some seriously deep stuff. And we spoke about some stuff that wasn’t so serious. So I think there’s going to be something there for everybody. And best of luck for your son’s birthday celebration in the next couple of days and is it going to be a big party?<\/p>\n
Will Perringwood 1:19:44
\nWell, we’re all going down because they live in the south coast and we live in the Midlands. A lot of my family we’re going down and on mass about nine or 10 of us are going down so we’re gonna bombard them with so many people and I’ve got literally just to my right now I’m just looking at the pile of birthday presents I’ve got wrapped for him.<\/p>\n
Bill Gasiamis 1:20:08
\nHe’s getting a pile of birthday presents.<\/p>\n
Will Perringwood 1:20:11
\nAnd it’s all dinosaur related cuz he loves dinosaurs.<\/p>\n
Bill Gasiamis 1:20:15
\nAwesome mate. Thank you so much for being on the podcast Will, I really appreciate it.<\/p>\n
Will Perringwood 1:20:19
\nThank you.<\/p>\n
Bill Gasiamis 1:20:21
\nThanks for joining us on today’s episode to learn more about my guests including the links and to download a full transcript of the entire interview, please go to recoveryafterstroke.com\/episodes. If you’d like to support this podcast, the best way to do it is to leave a five-star review and a few words about what the show means to you on iTunes, and Spotify.<\/p>\n
Bill Gasiamis 1:20:44
\nAnd if you’re watching on YouTube, comment below the video, like this episode, and to get notifications of future episodes, subscribe and hit the notifications bell. Now sharing the show with family and friends on social media will make it possible for people who may need this type of content to find it easier and that may make a massive difference to someone that is on the road to recovery after their own experience with stroke. Thank you again for being here and listening or really appreciate you and see you on the next episode.<\/p>\n
Intro 1:21:16
\nImportantly, we present many podcasts designed to give you an insight and understanding into the experiences of other individuals opinions and treatment protocols discussed during any podcast or the individual’s own experience and we do not necessarily share the same opinion nor do we recommend any treatment protocol discussed.<\/p>\n
Intro 1:21:33
\nAll content on this website and any linked blog, podcast or video material controlled this website or content is created and produced for informational purposes only and is largely based on the personal experience of Bill Gasiamis, the content is intended to complement your medical treatment and support healing.<\/p>\n
Intro 1:21:50
\nIt is not intended to be a substitute for professional medical advice and should not be relied on as health advice. The information is general and may not be suitable for your personal injuries, circumstances or health objectives. Do not use our content as a standalone resource to diagnose treat, cure or prevent any disease for therapeutic purposes, or as a substitute for the advice of a health professional.<\/p>\n
Intro 1:22:11
\nNever delay seeking advice or disregard the advice of a medical professional your doctor or your rehabilitation program based on our content if you have any questions or concerns about your health or medical condition, please seek guidance from a doctor or other medical professional.<\/p>\n
Intro 1:22:25
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Intro 1:22:48
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